Podcast

Rachel Goldenberg & Phoene Cave - "Breath, Voice & Singing in Long COVID"

In this episode of Long COVID Physio podcast we discuss with singer and vocal health specialist Dr Rachel Goldenberg and Music Therapist Phoene Cave, the role of breath, voice and singing for people living with Long COVID. Both Rachel and Phoene have vast experiences in the role of singing for health and well-being in a range of different health conditions. In this podcast they discuss the role, safety and implications of singing for managing the common Long COVID symptoms of breathlessness. Learn from their experiences of what works and what doesn't in a new paradigm of Long COVID healthcare.

Rachel Goldenberg website

The Musical Breath

How Music Helps in Music Therapy and Everyday Life

Long COVID: reshaping conversations about medically unexplained symptoms

Chronic fatigue syndrome and Long COVID: moving beyond the controversy

Emma Stokes & Tracy Bury - "World Physiotherapy Briefing Paper"

On 16th June 2021 World Physiotherapy published their latest briefing paper titled "safe rehabilitation approaches for people living with Long COVID: physical activity and exercise". In this podcast World Physiotherapy President Dr Emma Stokes and Deputy CEO Tracy Bury, discuss with Darren Brown (lead author of the briefing paper and co-founder of Long COVID Physio) the events leading up to this briefing paper, global dissemination, impact, sustainable messaging, World PT Day, and global rehabilitation leadership.

World Physiotherapy Briefing Paper

World PT Day Toolkit

Jasmine & Jenny - "Return to Work with Long COVID"

Jasmine Yule and Jenny Ceolta-Smith are both Occupational Therapists and in this podcast they discuss return to work, different types of "work" such as the work a person with a long term illness does in managing their health, strategies employed in return to work, and many useful resources. Visit Long COVID Physio website for more links, and here for the AHP fit note.

Jenna - "Mount Sinai Long COVID Rehab"

Jenna Tosto, PT, DPT, is a clinical and academic Physiotherapist in the Abilities Research Center at Mount Sinai, New York, United States. Jenna has been working within the Long COVID rehabilitation service at Mount Sinai and in this podcast shares experiences of developing, implementing, delivering and evaluating this novel approach to rehabilitation.   

- Stasis Breathwork 

Elaine - "Dietician Living with Long COVID"

Elaine Anderson is a registered Dietician from Ireland, living in the UK. In this podcast, Elaine shares her story of living with Long COVID including symptoms of fatigue and dysautonomia, and how diet and nutrition played a role in her experiences.

Keeley - "Battle of football and pacing"

Keeley Butler is a UK Physiotherapist living with Long COVID. In this podcast Keeley shares experiences from acute COVID-19 to Long COVID, the impact this has had on personal and professional life, and the battle between wanting to play football and needing to pace activities. Keeley describes how pacing and rest has helped manage symptoms of fatigue, brain fog, and post-exertional malaise, but football helps support physical and mental health. Finding the balance has not been easy, and at times really challenging. 

Kaba & Milo - "Long COVID in Switzerland"

Kaba Dalla Lana is a Physiotherapist in Switzerland with 30 years of practice experience, and has specialised in COPD and pulmonary rehabilitation. 

Professor Milo Puhan is professor of Epidemiology and Public Health and director of Epidemiology, Biostatistics and Prevention Institute, University of Zurich, Switzerland.  In 2020, Prof Milo Puhan together with other colleagues from Swiss School of Public Health (SSPH+) founded and currently coordinates the Corona Immunitas Initiative, that unites Swiss national efforts to determine the SARS-CoV-2 immunity of the general population as well as of vulnerable population groups and specific professional groups at high risk of infection. This includes data on Long COVID in Switzerland. You can learn more about this research here. 

In this podcast Prof Milo Puhan shares the approach and outcomes of coordinated data collection on Long COVID in Switzerland, and with Kaba shares their perspectives on the needs of people living with and affected by Long COVID, research plans, and requirements of healthcare services. 

Altea Netzwerk enables exchange between people living with Long COVID, their relatives, doctors, therapists and scientists through a professionally managed platform, launching 20th April 2021.

Todd - "Fatigue and Post-Exertion Malaise"

Dr Todd Davenport is Professor and Vice-Chair in the Department of Physical Therapy, School of Health Sciences, University of the Pacific, Stockton, California, USA. He is also scientific advisor to the Workwell Foundation.  

In this podcast Todd shares with us his research in ME/CFS and post-exertion malaise. He discusses the characterisation of ME/CFS, the challenges with the word "fatigue" in describing a wide range of severities, identifies what post-exertion malaise is, and how to assess and measure it in clicnial practice, research and as an outcome over time. Todd also shares the lessons that can be shared between  ME/CFS and Long COVID.   

Workwell Foundation

PhysiosForME

OT/PT For ME/CFS

DePaul Symptom Questionnaires 

Post-Exertion Malaise: 

- Long COVID Physio 

- ME Association 

- Dialogues ME/CFS 

Jenny - "Critiquing Therapeutic Exercise"

Dr Jenny Setchell is an NHMRC Research Fellow in Physiotherapy in the School of Health and Rehabilitation Sciences, Faculty of Health and Behavioural Sciences, The University of Queensland, Australia. Her research interests include post-structuralist critical perspectives on healthcare broadly, and physiotherapy specifically. Jenny researchers within the SocioHealthLab, which is a research collective that pursues social transformation in health and healthcare through applied socio-cultural research, on the topics of critical disability, stigma, pain, post-structuralism, new-materialism. Jenny is a Physio, radical thinker/doer, ex-acrobat and founding member of the Critical Physiotherapy Network (CPN). 

In this podcast Jenny discusses troublesome aspects of therapeutic exercise, that are infrequently debated as the virtues of exercise are assumed to be obvious. In her paper "Keep fit: marginal ideas in contemporary therapeutic exercise" published in the Special Issue: Exercise is Medicine: Qualitative Contributions of Journal Qualitative Research in Sport, Exercise and Health, it is argued that seeing therapeutic exercise as primarily ‘medical’ carries with it consequences – some recognised, others unseen – that are problematic and worthy of consideration. In the paper (and this podcast) Jenny explores how therapeutic exercise is being instrumentalised, normalised and constrained, arguing for much greater critical attention towards its putative ‘goodness’ and virtue as a health intervention. This is not, of course, to suggest that all therapeutic exercise is bad, only that in promoting some important uses, other effects and possibilities are marginalised, lost or remain unstated. 

Simon - "Long COVID Rehab Research"

Simon Décary is an academic Physiotherapist and post-doctoral research fellow at Université Laval, Quebec, Canada. Simon's background is researching shared decision making in healthcare. He was awarded the only funding in Canada to study Long COVID rehabilitation interventions. In this podcast Simon shares the incredible journey from initial study design and huge learning curve the team have been through, leading them to stop, reflect, learn, and change the study objectives and interventions. Simon shares his honest and transparent reflections of how working with people living with Long COVID and ME/CFS advanced this research study for the better. 

Colleen - "Uncertainty & Anxiety"

Colleen is a Physical Therapist (Physiotherapist) in Texas, USA. In this podcast Colleen shares her story of the uncertainty and anxiety of living with Long COVID.

Rob - "Experiences of Long Covid & M.E."

Rob is a musculoskeletal (MSK) Physiotherapist from Newcastle, UK. In this podcast Rob shares his story of living with Long COVID and experiences of Myalgic Encephalomyelitis (M.E.) also know as Chronic Fatigue Syndrome (CFS).

Grace - "Acceptance & Stigma"

Grace is a community Physiotherapist from Glasgow, Scotland. In this podcast Grace shared her story of living with Long COVID and described how her life "has been completely turned upside down". Grace shares her challenges with accepting the new and sudden changes in health, and the stigma that can contribute to these challenges. Useful links of topics discussed are provided below:

The Spoon Theory of Pacing Explained

Spoon Theory App "Spoonie Day"

Ted - "Living and Working with COVID"

Ted is a paediatric Physical therapist (Physiotherapist) from Detroit, Michigan, USA, who also works in adult acute care responding to COVID-19. In this podcast Ted shares his story of living with Long COVID, diagnostic tests, acknowledging symptoms as Long COVID, recognising limitations, and reaching out for help. He also shares his experiences of living with Long COVID whilst working in healthcare responding to the COVID-19 pandemic, comparing remote tele-rehabilitation from home with in-person clinical care. In this podcast Ted references #StopRestPace.

ME Action “Stop Rest Pace” campaign

Caroline - "Navigating Health and Care"

Caroline is a community neurological physiotherapist. In this podcast Caroline shares her story of having acute COVID-19 and living with Long COVID, navigating healthcare, living with uncertainty, and managing physical activity and pacing. In this podcast we also discuss using pulse oximetry at home which you can find important links below:

NHS England Important information to keep you safe whilst isolating at home

NHS England Adult remote monitoring COVID-19 diary

Helen - "Navigating Pacing"

Helen is a neurological rehabilitation Occupational Therapist in London, UK, living with Long COVID. In this podcast Helen talks about the challenges of navigating pacing as a rehabilitation professional with a clinical wealth of knowledge and experience in the context of pacing. Find out more about pacing.

Daria - "Running & Dancing"

Daria is a Physical Therapist (Physiotherapist) from New Jersey, USA. In this podcast Daria talks about her story of living with Long COVID, the challenges navigating the balance between rest and pacing with participating in meaningful activities, plus the difficulty with accepting limitations. Links to topics discussed in this podcast are posted below:

Heart Rate monitoring by @PhysioForME

PT Health Study

Long Covid and Post-Exertion Malaise

Long Covid and Caution with Exercise

I Am Redo Professional Dancer

Dance and Disability in the UK

Disability Arts International

Disabled Leaders in Dance

Sue - "Not Living with Fatigue"

Sue is an NHS therapy technician / support worker, living with Long COVID. In this podcast Sue talks shares her story if living with Long COVID, experiences with fatigue, and what she has been doing to self-manage physical and mental health. Links below are resources discussed in this podcast:

Daily Tai Chi with Michael Tingle

Headspace

Calm

Insight timer

Samaritans (Tel: 116 123)

Every Mind Matters